Posted by Mary on August 01, 2005 at 05:12:42:
We are selling our house and will be moving. I have been too busy to post but thought I'd drop in. Also, we were w/out internet ability for weeks. We are in the whole w/bills and had to allow the service to be cut off until we had the $$$. Hence, why we are moving....
Anna is suppose to start school in August but I am not sure where. I may keep her in the place she started if possible. She still has troubles. She is talking a lot more and everyone else is sooo sure she is ok....I don't know anymore. I am tired of fighting everyone and everything just to get the listening ear and the help I need. I give up. I can't afford to get her evaluated. Social Security is taking its sweet time responding and I haven't had time to locate and go apply for medicade so now I can't get Anna re evaualted like I wanted. It has been a year since her diagnosis.
My gut feeling tells me Anna isn't going to get "over" this. She still has such a wide gate when she walks, my 2 yr old son can out climb, out run and out jump her. I still have to snap and repeat things just to get her attention. She still can't explain herself or respond to complex sentences. She will be 4 in October. She still looks off into no where from time to time. She still repeats back things you say (worse when she is stressed). She picks at her hands off and on all day, rubs our faces when she is tired, rubs her brothers fingers and face. She still wants her bottle, won't potty train. She still has a monotone voice and will still say the same word over and over and over. And sentences over and over and over. She is half the day in Annas world and half in ours. SHoooo enough venting here. Everyone says that since she is talking that she is progressing so therefor I should just shut up, stop worrying, ect., ect...........but I am the one with her all day. I deal with her melt downs. If she dosen't get her green cup, her yellow this or that.. If we break our routines and if she wants to stay home. If she doesn't get to be the baby at the grocery store and sit in the front of the cart. And it is so hard. It is hard to see her soon to be turning 4 and I still can't have a real back and forth conversation with her. I watch her struggle to climb stairs and worse of all she just seems sad. Yet, she is talking a lot more and asking what questions at times...even though she dosen't wait, or understand my answers most of the time. Mostly, she just seems to me to be 'out of it' a lot. That is the only way I can describe it.